16 years ago, our Someone 2 Know started as a grassroots organization to improve experiences and opportunities for people with Down Syndrome. The genetic disorder is caused by the presence of all - or part of - a third copy of Chromosome 21. Today the non-profit Down Syndrome Network of Northern Nevada is growing and helping hundreds, every year.
We stopped by their Reno headquarters where the Foote family is enjoying some playtime in the space adjoining the office. There is laughter, exploration and relaxation. The Executive Director, Christina Ugalde, tells us it’s moments like these that are at the core of the mission for Down Syndrome Network of Northern Nevada (DSNNN). "It's not just for the one person with Down Syndrome, it's for the whole family because if the family is taken care then we're gonna have better outcomes for the individual with Down Syndrome."
Kimberly Foote wholeheartedly agrees and appreciates what DSNNN offers. "When our son was born we knew that he was going to be born with Down Syndrome, and initially we didn't know how to navigate that.”
On any given year, the Down Syndrome Network of Northern Nevada, serves between 50 to 60 families - like Kimberly’s - by providing information, education, and support. “Never be afraid to ask for help no matter what,” enthuses Foote.
The sooner the better says Ugalde, as there are programs for newborns up to adulthood.
"We have a family services coordinator, Katy, who meets with families one-on-one to see what kind of services they need and she helps them to attain them,” explains Ugalde, adding that a myriad of services are available in northern Nevada. DSNNN does not charge for this coordination for anyone in the family.
It's all confidential. Plus, the network offers a variety of fun outings for families like The Buddy Walk, a bowling team, a day at the ballpark, and “we do a Wiggle Giggle and Learn program which is for families who have a child age zero to five,” adds Ugalde. Plus, “for individuals 14 and older, we just do an ‘every other month go-out and do something together event.’”
Once a year, DSNN hosts the very special "Lucky Few Fall Festival", which kicks off with a screening of the movie "Where Hope Grows", starring Kristoffer Polaha who is a Reno native, and David DeSanctis who is an actor who has Down Syndrome. Then there's the day at Ferrari Farms in Reno which includes lunch, a carnival, the pumpkin patch, cotton candy. “You get a hay ride, corn maze and of course David and Kristoffer will be there, as well,” adds Ugalde
The phrase "The Lucky Few", confides Ugalde, is how families in the Down Syndrome community like to refer to themselves. “Because it is just such a special experience; they will make your heart grow – enormously.”
"I do feel very fortunate to be one of the lucky few,” agrees Foote, “I think we all do."
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The Down Syndrome Network of Northern Nevada is a non-profit with a part-time staff and a tiny budget.
A fun way to learn more and support the cause - is coming up this at this weekend's Lucky Few Fall Festival.
The movie is showing Friday night (October 20, 2023) at the University Nevada, Reno and the day at Ferrari Farms is Saturday (October 21, 2023). Ticket prices range from $5to $30 depending on age and activities.
Down Syndrome Network of Northern Nevada
CONTACT
T: 775-501-0056
1301 Cordone Ave. suite 114
Reno, NV 89502
